Therapy Day One

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08 Jun 2009 22:39 #1 by Gwynedd (Gwynedd)
Therapy Day One was created by Gwynedd (Gwynedd)
Hi Everyone,

I had my first round of IVIG treatment today!  It went very well.  I did not have the bad reaction that I was afraid of.  All I had was some mild nausea and a headache.

I do another round tomorrow and if I do well on that I can go do the rest of the therapy at my neurologist's infusion center. 

Thank you all for sending good thoughts and prayers my way. 

Gwynedd
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08 Jun 2009 23:06 #2 by Woolsey Bysmor (Osred)
Replied by Woolsey Bysmor (Osred) on topic Therapy Day One
Our thoughts are with you!  Good Luck tomorrow!
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08 Jun 2009 23:16 #3 by Lois Heimdell (LoisMaxwell)
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Best of luck!!!! I hope that all continues to go well.
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08 Jun 2009 23:58 #4 by LStarling (Kwildar)
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Good luck, Suzi.  I'll be praying for you as well.
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09 Jun 2009 00:02 #5 by Jurgur'mosh Goretusk (MattF)
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good to hear, keep up with the good news :)
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09 Jun 2009 10:05 #6 by McDermitt (Matt Quagz)
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best of luck
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09 Jun 2009 10:22 #7 by Erim Walker (shiva14b)
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Keep us posted
"Ok we can attack... but if we miss, we'll hit the villagers."
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Things I am no longer allowed to do in an RPG :
31. The backup trap handler is not whoever has the most HP at the time.
73. Not allowed to name my cudgel Ceremonial Whoopass Stick.
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09 Jun 2009 10:44 #8 by geezer (geezer)
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Congrats. Suzi.  Now I don't feel like an Ogre for making you go to bed.
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09 Jun 2009 11:38 #9 by Amizar (Amizar)
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(From the Jefferson Hospital Cafeteria)

Day two is underway: 90 mL/hr, 600 mL total to be infused.  We'll be here a while.

This should be the last day for Jefferson; tomorrow we move over to the doctor's office for more of the same on Weds, Thurs and Friday.

Suzi is in fine spirits, and it is truly a blessing to have the good thoughts and prayers from y'all.  <hugs> to everyone.
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09 Jun 2009 11:57 #10 by Erim Walker (shiva14b)
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So what exactly is this treatment, and what is it supposed to do?
"Ok we can attack... but if we miss, we'll hit the villagers."
"I'm willing to take that chance!"

Things I am no longer allowed to do in an RPG :
31. The backup trap handler is not whoever has the most HP at the time.
73. Not allowed to name my cudgel Ceremonial Whoopass Stick.
74. My thief's battle cry is not "Run And Live"

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09 Jun 2009 12:13 #11 by Amizar (Amizar)
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So what exactly is this treatment, and what is it supposed to do?


Suzi has been diagnosed with CIDP en.wikipedia.org/wiki/Chronic_inflammato...ating_polyneuropathy .  IVIG is a week-long set of visits where she gets new antibodies infused to replace her current antibodies that are attacking the myelin in her peripheral nerves.

After about six months of these treatments, if all goes well, she'll regain her sense of touch and then be able to walk unassisted!  Woot!
Imagination is more important than knowledge - Einstein

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09 Jun 2009 13:00 #12 by Noctra (Noctra)
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All the best...
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09 Jun 2009 13:37 #13 by Erim Walker (shiva14b)
Replied by Erim Walker (shiva14b) on topic Therapy Day One

After about six months of these treatments, if all goes well, she'll regain her sense of touch and then be able to walk unassisted!  Woot!


We'll be sure to await the removal of the green headband with boffers in hand.
"Ok we can attack... but if we miss, we'll hit the villagers."
"I'm willing to take that chance!"

Things I am no longer allowed to do in an RPG :
31. The backup trap handler is not whoever has the most HP at the time.
73. Not allowed to name my cudgel Ceremonial Whoopass Stick.
74. My thief's battle cry is not "Run And Live"

[OOG Jenna
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09 Jun 2009 13:38 #14 by Ming Na (Ming Na)
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Awesome  best of luck
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09 Jun 2009 13:55 #15 by geezer (geezer)
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But you have to keep using that really neat walker IG, even after your full recovery.  :)
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09 Jun 2009 15:23 #16 by LStarling (Kwildar)
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I have to admit, that walker, even if reduced in its role to just a prop (Which I pray is achieved) is in fact, made of a whole boatload of win. :)  You guys really found a gem there. :)  I'll be standing by, eagerly awaiting news of how everything is going for you and Suzi, Paul.
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09 Jun 2009 16:34 #17 by Liz (Liz)
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Best of luck sweetie!
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09 Jun 2009 17:23 #18 by Gallion (Gallion)
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I know you are strong and everything will be OK, but I'll say good luck anyway ;) Good Luck!

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09 Jun 2009 18:09 #19 by reona_amira (reona kumagai)
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as awesome looking the walker was, I send good wishes towards her goal of walking unassissted!

Sends lots of <3 <3 <3
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